The Children’s Treehouse Foundation

“I don’t want to alarm my children, but I don’t know want to lie to them either. How much should I tell them?”

“I think my child understands, but I don’t know. He never says anything to me about my cancer.”

“What should I answer when my daughter asks, ‘Are you going to die?’

These questions are common in families parenting through cancer. Parents frequently struggle with communicating with their children around the illness, the treatment and the range of emotions that the entire family experiences. I recently became acquainted with an organization that assists families with these concerns.

The Children’s Treehouse Foundation is the nation’s only organization providing hospital-based, cancer-focused, psychosocial intervention training and programming dedicated to improving the emotional health of children whose parents have cancer. Founded in January of 2001 in Denver, the organization has been granted 501(c) (3) status as a public charity by the Internal Revenue Service. The organization was created by Peter van Dernoot, whose wife was diagnosed with terminal lung cancer when their children were in their early teen years.

According to a brochure provided by the Foundation, the organization “envisions a world where preventing the inevitable psychosocial impact on children whose parents have cancer is taken as seriously as finding a cure for cancer itself.” The Children’s Treehouse Foundation supports these children and their families with multiple resources.

Mr. Van Dernoot has published two excellent resource books on this topic:

helping your children cope with cancer“Helping your Children Cope with Your Cancer” begins with four chapters written by professionals who provide guidance on the needs of children in families where a parent has been diagnosed with cancer. The remainder of the book is a collective of narratives from parents allowing honest insight into the impact of their diagnosis on their family. The book also allows readers to hear directly from the children themselves through their comments, essays and drawings.

Talking with my Treehouse“Talking with My Treehouse Friends About Cancer” is an activity book for children participating in the CLIMB program. This books has pages that prompt the child to express his feelings through word or pictures.

The Children’s Treehouse Foundation provides cancer centers and hospitals with professional training to enable them to launch support programs for the children whose parents have cancer so they are better able to cope in that unsettling, frightening, and stressful environment. They receive training and program manuals, a power point presentation, a DVD, and children’s activity material developed by the Foundation’sCLIMB® (Children’s Lives Include Moments of Bravery) program, funded in part by the Avon Foundation.

The family burden of dealing with cancer, and the inevitable stress, can also be significantly reduced through group support available through the The Children’s Treehouse Foundation.

The above information was posted with permission from Mr. Peter van Dernoot, founder of The Children’s Treehouse Foundation. To find more information on the organization or to obtain their books, please visit the website, www.childrenstreehousefdn.org.

Mom’s Cancer through the eyes of her Daughter

“Brushing Mom’s Hair” is a recently published poetic peek into the daily thoughts of a teenage girl whose mother has been diagnosed with breast cancer. Written by Andrea Cheng, the book comes from a very personal place. I recently had the pleasure of exchanging information with Andrea and she was very kind to answer my questions.

I knew that this book would be meaningful when I read that Andrea had waited to publish it at the request of her daughter. The poems were written in a voice she felt would represent her youngest daughter who was nearly 15 when Andrea was diagnosed with breast cancer. The book is intended for ages 11 and up but not necessarily just the obvious audience. Andrea stated, “I see it as a book for all kids, not just those touched by cancer in their families. I feel like it might be even more important for the ‘other’ kids who are not going through this sort of situation at the moment to learn what their friends may be experiencing”.

She was very candid in expressing how her diagnosis had affected each of her children, all teens at the time, differently. Even her oldest, who was in college, struggled with the implications of the cancer. She was also very honest in responding to my question of how she recalled talking to her children about her situation; “The whole time feels blurry.  I felt sick and also very tired a lot of the time.  I remember laying on the couch and wishing I could help the kids but not knowing how and then dozing off”.

The narrative is candid and covers the common physical consequences of breast cancer as well as the emotional impact on a teenager who is observing all of this. One of the loveliest comments that Andrea Cheng made was “I guess I want to give the kids (and the world) the message that there are lots of ways to be fine.” That really struck me as there are a number of choices that an individual can make to change their appearance during and after treatment: reconstruction, prosthetics and wigs, to name just a few. It is truly a message of strength to “be fine” in one’s own body when that body has been so mightily defended.

More than five years later, Andrea says that her children have incorporated the experience of her illness into the story of their teenage years. Her comments about her children were very reassuring to me and will be to other parents as well.  She says that her children respect the fragile gift of life but also have become stronger themselves and more aware of what a person might be capable of surviving.

Please visit  www.andreacheng.com for more information on this and the author’s other works.

To visit the Amazon listing for “Brushing Mom’s Hair” by Andrea Cheng, please click here.

Featuring Cancerdirectory.com

 

 

 

Here is the first of what I hope will be many guest posts by other cancer resource websites that serve the cancer community. Please take a look at what cancerdirectory.com has to offer and visit their site for more information…
-Cancerdirectory.com is one of the leading and most respected cancer information websites, dedicated to helping those affected by cancer as a way to bring happiness back into their lives.
We are a community of patients, survivors, family members and health professionals who share our individual stories with each other and the world.
Cancerdirectory.com includes survivor blogs as well as the latest cancer and treatment news, reviews and links to the best cancer sites on the internet.
If you would like to blog with us, have a blog or a website you would like us to review, please send us an email to lauri@cancerdirectory.com. 
We hope we can help you through this difficult time!

 

 

“Being” Cancer

Last night I discovered a pretty amazing website: www.beingcancer.net. This is a site by a cancer nurse and survivor of T-PLL who is really creating a community of and for those who have been affected by cancer. His blog posts are a mix of today and flashbacks to the time of his diagnosis, treatment and ongoing journey. He includes a host of other resources for the cancer community: blog links, websites and an upcoming Book Club. Dennis Pyritz is someone who knows this disease form both sides of the port.

His philosophy of “being cancer” really resonates with me. The diagnosis really does integrate itself into every segment of your life, even as a spouse. From that first day forward, it becomes a part of your decision making: good, bad or ugly. It’s just always in the room with you. I used to wonder how long it would make me look over my shoulder…one year? Five years? I’m beginning to wonder if I always will…

Camp Kesem

Last Friday, it was my pleasure to speak with Sarah Blumenfield of Camp Kesem. This camp is free of charge for children in families with a parent affected by cancer. They expect to serve 1,000 children in 22 camps this summer. Those numbers just astound me. 1,000 kids who get to run, play and sing camp songs this summer. 1,000 kids who get to hang out with other kids who know exactly how it feels to have a bald mommy, how it feels to live with the “c” word, how it feels to worry about losing a parent.

Speaking of parents, Camp Kesem provides a peace of mind for them too. imagine sending your child off to sleep-away camp and having him come home with new friends that wil be able to support and reassure like no one else, no matter what.

Hats off to you, Camp Kesem! May your “magic” continue for many more years.