Give Responsibly

It is now October.

October, of course, is Breast Cancer Awareness Month. And that means that every store shelf and sale circular’s color scheme seems to be taken straight from the little girl aisle at the toy store. Seemingly, every food product, household cleaning product and piece of athletic apparel is either enclosed within pink cardboard or embroidered with a tiny pink ribbon and with the promise of making a donation to a worthy foundation. The disease behind all of these ribbons is the second most common type of cancer in women. It changes the lives of women and the people who love them, as some of you know all too well. That’s why we care about those pink ribbons. It’s also why all of this pinkness inspires me to encourage you to shop responsibly. 

Cancer took my mother from me and threatened to take my husband. I know too many who are actively fighting or walking wounded. As a result, I applaud and agree with your spirit of giving. The thoughts that I have about charitable giving apply all year long but there is something about the power of the high profile pink ribbon that causes some of us to lose sight of the big picture. Since our desire to contribute to any important cause comes from the right place, I think it is only fair to ensure that our money also goes to the right place.

Therefore, please consider:

Is the company offering that widget truly committed and generous with their support of the foundation? How much of your purchase price will actually be donated? You might be surprised how small the percentage will be in some cases.

Does the company cap their donations? If the donation is made only for the first million thing-a-ma-jigs sold and you’re about to buy the million and first, then you are no longer a giver; you are just a consumer. And if you still want to buy the thing-a-ma-jig, then please do. Just do it knowingly. 

Is the company responsible and consistent with your belief system in its other corporate practices? Would the proposed donation mean the same thing to you if a hypothetical company made contributions to a children’s charity but also used child labor?

Remember that if you admire a charitable organization and believe in their cause, you can contribute to it without purchasing anything. Simply get out your checkbook and fill in the amount. The beauty of this method is that they will get 100% of the amount and it is capped only by you. It never hurts to do a quick check of any organization through a website like Charity Navigator or Guidestar. They offer information on how to evaluate an organization and ensure that your money will be used responsibly. Among other things, you will want  to see how much of the donation will go towards administrative or fundraising costs versus the actual work you’d like to support. The sites can also help you identify the best choices among the many organizations that work within a category of your choosing. 

Having made all of these suggestions, I believe that if all things are equal and you need a box of do-dads, then buying the box that has a worthy cause attached is a lovely thing. In these times when more might be in need and when giving might be a bit harder, doesn’t it make sense to be more conscious when you spend with your conscience?

There are many worthwhile organizations that truly make a difference in our lives and in the world. Their fundraising and awareness activities are important. Just make sure that the purchase of that watchamacallit will create the good that you expect and make your giving matter.

Leaving a Trail

“Do not go where the path may lead. Go instead where there is no path and leave a trail.” Ralph Waldo Emerson

 

Dennis Pyritz, of www.beingcancer.net, raised an interesting topic this week. He was talking about the community of cancer bloggers and just asking questions about what motivates people to blog about their experiences, why they continue even after treatment has ended and what it means to be part of the larger picture. It’s good timing because I have been thinking about some of those very issues but more related to the decisions that people make after they have gone through a difficult situation such as cancer. 

We all know that cancer has a way of sorting out our relationships for us. We quickly see which friend is willing to rise to the challenge, which relative stranger comes out of nowhere to go above and beyond for us and which friends and family members simply fade away. I have known people to be astonished and dismayed to discover that the very friend that they expected to understand the best failed them. How could it be that the friend whose own life had been touched by cancer would be the one to turn away? I have really been considering this over the last few weeks. What is it that makes some of us extend a hand to help another in a similar situation? And conversely, why do the others not feel compelled to assist, to give back, join the fight or pave the way? 

Personally, I am here to try to provide the resources that I looked for and could not find for our son. I am here to express the thoughts that I did not feel previously able to put into words. When my husband was in treatment, I did not have the strength, time or wits about me to put a website together to help others. I guess that is not very admirable in the face of people who devote their days to the cause even as they actively fight their disease. But it’s true and although I showed up a bit late for the party, I am here now.

And I do want to validate other spouses in their own inability to focus on anything aside from what is happening in their very own homes for a time. I do want to respect that just as we all grieve in different ways, we also do cope in different ways, rage in different ways and heal in different ways. But don’t all of those emotions come from the same place within us?

I think that is the reason that I do not understand why others do not feel the desire or responsibility of making the path a bit smoother for someone who is coming behind. Especially if someone else walked before us cutting a wide swath in the thicket to make our own trudging a bit easier. Or maybe walked along with us just so we wouldn’t feel alone. 

And so, Dennis, I think that’s part of why I blog in the wee hours of the morning. Because if I didn’t emerge from my husband’s diagnosis a little bit wiser or more resourceful or kinder or more grateful then I think I failed him in some way. And I don’t want this family to go back and try it again, that’s for sure.

On “Being Cancer”

Michelle asked me to write a guest post for her really unique blog.  When I first heard about her Living Sunny Side Up and added her to my small, evolving blogroll, I had to create an entirely new category.  She addresses a situation that is so common to adult cancer survivors that it is surprising no one else had yet conceived a blog dedicated to helping cancer victims deal with parenting issues.

 

When I was first diagnosed, I had already been working as a cancer nurse for most of my children’s lives.  I have a photo of my two oldest boys, now 34 and 31, as two young boys, shirts off, with me drawing a skeleton on Nathan’s chest, and organs – heart, lungs, stomach, liver – on Ben’s.  They became part of my nursing school experience.  I would sometimes take them to the university swimming pool, arriving there from the underground maintenance tunnels that linked the buildings on campus.  Later, when I worked in the hospital, I would take for tours.  Sometimes we would stop and visit with some of my patients.

 

I had been working in oncology for 15 years when I was diagnosed, working at the bedside, serving as manager, serving as mentor and teacher.  I had given talks around the country and around the world.  I had taught cancer nursing in a dozen developing countries.

 

And yet on the day that I was given a differential diagnosis of lymphoma or leukemia, none of this experience had prepared me or my family for how to react or how even to talk about it.  From my journal:

 

I get home and my youngest son, Aaron, runs out to tell me that he has had three calls from doctors in the past 10 minutes.  Two from Tom, our family doctor, and one from a new doctor who told him that I have a Friday morning appointment.  Aaron is getting ready to leave for a four day National Catholic Youth Conference in downtown Indianapolis.  He had noticed on Tuesday the bandage and cotton ball on my arm.  And he now realized that I had taken the day off from work.  I have not thought this through and vaguely worry that I may be in the hospital by the weekend, before he returns home. So I sit Aaron down on the front steps and tell him that I might have a type of cancer.  I start to get tearful which I did not want to do – not now.  I regain control.  I tell him to pray for our family during his retreat.  Then I send him off.

As soon as they drive away I worry that I have made a mistake in telling him like that.  I try to call out to them as they back their car into the street.  I want to tell Norma, the group leader and our neighbor, what was going on and what I had told Aaron.  But they do not hear me.  

 

 

I was soon in the heat and fury of active treatment.  It was left to my wife, Tish, to deal with the parenting issues.  My oldest two were living their young adult lives by then.  So I cannot pretend that I know much about dealing with young children at home.  I have two young granddaughters now, 4 and 16 months, with twin baby girls on the way.  I am grateful that they were born after my illness, spared the confusion.

 

Here we are, some years later, and I have an eight-month old blog, Being Cancer,  dedicated to “networking people transformed by cancer.”   Michelle generously thought that there might be something of value at my site specifically for parents with cancer.

 The most popular feature is Cancer Blog Links , containing over 600 blogs divided by disease category.  Parents with cancer may find some new perspective in the categories populated by children’s cancers – neuroblastoma, leukemia, and brain cancers mainly.  Scattered throughout the list are hundreds  of blogs by people who are also parents of young children, including many of the breast cancer bloggers.  Also see Mothers with Cancer blog.

 

Mondays are Book Club discussions.  In the archives are reflections on our first selection, The Last Lecture, in which a dying father’s concerns for his young children are central themes.  In the Reviews section you can find book and movie reviews related to cancer.  A recent review of My Life Without Me deals with maternal legacy concerns.  My Cancer Resources page contains close to 300 references.  Although I have not started annotating the list, relevant material may be found in the ‘Support” and “Childhood Cancers” sections.  And, of course, shamelessly sprinkled throughout the site are dozens of photos of my girls, Sophie and Isabel.

 

I thank Michelle for this opportunity to introduce my site.  I look forward to your visits and comments.

 

Dennis Pyritz, RN, BA, BSN

Being cancer, networking people transformed by cancer

 

 

Secret Cancer Handshake

I have a customer that I see fairly often for my day job. He’s one of those guys that is incredibly smart and kind-hearted but also loud and a little bit grumpy around the edges. Just enough to be endearing, at least to me. He was diagnosed and began his treatments late last year. His profession is such that his condition wasn’t made public but not exactly hidden either.

One day during treatment I saw him and asked “How are you?” his head raised from his reading and the look that started was one meant to put me in my place. I quickly raised my hand in peace and said, “Just so you know, my husband is a cancer survivor and so when I ask “How are you?’ I really am asking.”

In that next moment, more passed across his face than I could have ever expected. Suddenly there was understanding of a whole different level. Our relationship has been completely different since that day, for the better. I had revealed a raw truth to him that seemed to make a difference that day.

It’s kind of like an inside joke with an old friend or the secret Cancer Handshake for an exclusive club. I really don’t recommend this method, however. It’s really just not as funny as that joke among friends and really, there must be an easier way to make friends.