I am the wife of a two year Hodgkin's Lymphoma Survivor. I make my living during the day but after tucking our little boy into bed at night, I make my life in part by supporting families as they move through a cancer diagnosis.
I am not a child life expert, an oncologist or a psychochologist. I will never pretend to be. But I will share the resources that I create or discover and I will help you find them too.
My little boy always says, "Let's hold hands and help each other be brave." He was two and sitting on my lap when his Daddy got his diagnosis. I know the thoughts that go through a spouse's mind at that moment and I know how it feels to look over my shoulder every three months. And although I do not know how it feels to have chemo, I know how it feels to hold his hand and try to hold it all together.
I am Living Sunny Side Up.
Hi,
I love your website, although I’m sure it grew from the terrible experience of Hodgkins. I, too, am a lymphoma survivor (NHL) and am avid patient advocate. I’ve recently started a series of weekly webcasts. Next week’s show (10/21) is “When a Parent Has Cancer: Helping Children.” Guests are Peter Van Dernoot of the Children’s Treehouse Foundation and Jamie Reno, lymphoma survivor, father, and author of a new book entitled “A Snowman on the Pitcher’s Mound” which is written from the perspective of a 10 year old boy whose mom has lymphoma. The link to see the webcast is http://bit.ly/4vYgWf. If you’d like to share it with others in your group, please feel free. I truly hope that it will be helpful to moms and dads everywhere.
All the best, Betsy de Parry